硬皮病
Overview
硬皮病是一种罕见的慢性疾病，会影响身体的许多部位，包括皮肤, 关节, blood vessels and internal organs. The word "scleroderma" means hard skin. One of the most visible 症状 of the condition, also called systemic sclerosis, is hardening or thickening of the skin. 这种疾病对女性的影响是男性的三到五倍，通常发生在30到50岁之间, but can occur in children and the elderly.
硬皮病 can be 有限的, affecting mainly the hands and face, or 扩散, affecting the arms, legs and trunk. 症状可以有很大的不同，从关节炎和肌肉衰弱到肾脏问题.
这种疾病涉及一种叫做胶原蛋白的蛋白质过量沉积在皮肤和器官中, which leads to the thickening and hardening of the skin.
这种情况不会传染，也不会传染，病因不明.
有许多药物可以帮助治疗病情和控制症状, but there is not yet a cure.
Our Approach to 硬皮病
加州大学旧金山分校为硬皮病提供全面的评估和高级护理. Because scleroderma can affect different systems in the body, our team includes several types of doctors, such as rheumatologists, 关注自身免疫性疾病的皮肤科十大赌博平台排行榜和整形外科十大赌博平台排行榜. 我们还与专门研究间质性肺疾病的同事密切合作, 肺动脉高压和硬皮病的其他潜在并发症.
治疗方案包括治疗硬皮病的症状和并发症的药物. 我们还建议锻炼和物理治疗，以增加灵活性和保护关节. Although there is currently no cure for scleroderma, we are dedicated to alleviating patients' suffering.
我们还致力于通过研究提高对硬皮病的认识和治疗. 感兴趣的患者可以选择通过十大赌博靠谱网络平台临床试验来接受研究性治疗.
奖 & 识别
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Among the top hospitals in the nation
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Best in California and No. 7 in the nation for rheumatology
迹象 & 症状
硬皮病 can affect everyone differently. 以下是与该病症相关的一些一般症状.
Skin changes, 包括:
- Hardening of your skin, particularly on your hands, arms and face, and occasionally on your trunk and legs
- Loss of hair over the affected area
- Change in skin color
- Ulcers or sores on your fingers
手或脚肿胀或浮肿，通常发生在早晨.
A condition called sclerodactyly, 哪一种是手指和脚趾的皮肤增厚或硬化, also can occur. 这可能在最初的肿胀消失后发生，随后可能出现皮肤萎缩或萎缩. You may experience:
- Skin on your fingers and toes becoming hard and shiny
- Difficulty bending your fingers
雷诺现象，一种与手指和脚趾的血液流动不畅有关的疾病. 由于寒冷或情绪紧张，这些区域的血管会在短时间内变得狭窄，从而导致血流量减少. Raynaud's Phenomenon may cause:
- 你的手指、脚趾、耳尖、鼻子或舌头对寒冷非常敏感
- Your fingers to turn bluish or very pale
- Your fingers to feel tingly, numb or cold
毛细血管扩张，当微小的血管扩张并穿过皮肤时就会发生. 你的手指、手掌、脸、嘴唇和舌头上可能会出现红色的小斑点. These spots are harmless and can be hidden with cosmetics.
钙质沉着症，当皮肤内或皮肤下形成白色的小钙块时发生. 它是由硬皮病引起的，而不是因为你的饮食中含有过多的钙. 肿块偶尔会冲破皮肤，漏出一种白垩白色的物质. If injured, they may become infected.
Arthritis and muscle weakness, 包括:
- Pain, stiffness and swelling
- General fatigue
- Muscle weakness, often in your upper arms or thighs
消化问题，包括食道和肠道功能不佳. Symptoms may include:
- Difficulty swallowing
- 胃灼热
- 腹胀
- Nausea or vomiting
- 减肥
- Diarrhea or constipation
If the heart and lungs are affected, you may experience:
- Shortness of breath
- Persistent cough
- 胸部疼痛
肾脏问题，如肾衰竭和高血压. Symptoms may include:
- 乏力
- Severe headache
- Shortness of breath
- Trouble seeing
- Mental confusion
治疗
药物治疗
Although there is no current cure for scleroderma, there are many drugs available to help control it, 包括:
- 阿司匹林或非甾体抗炎药(NSAIDs)治疗关节疼痛和肿胀
- Steroids to treat muscle and joint problems
- 抗酸剂，缓解胃灼热和肠道蠕动，保护食道和胃
- Medication to treat high blood pressure
- 通过增加手指和脚趾的血流量来治疗雷诺氏症的药物
锻炼
运动对硬皮病患者非常重要，因为它可以增加皮肤和关节的灵活性, promotes blood flow and prevents contractures. 你的十大赌博平台排行榜和理疗师可以和你一起制定一个健康的锻炼计划.
Joint Protection
你可以通过学习以一种特殊的方式进行日常活动来减少关节的压力和伤害. 职业和物理治疗师可以教你如何通过保护关节来减轻疼痛和增强功能.
Skin Protection
You can protect your skin from injury by:
- 保持身体温暖有助于打开手臂、手、腿和脚的血管
- Using a cold-water humidifier to keep your skin moist
- 避免使用强力洗涤剂或其他可能刺激皮肤的物质
- Trying soaps, creams and bath oils that prevent dry skin
- Leaving calcium deposits alone
- Keeping finger ulcers clean
Stress Management
患有慢性疾病可能会造成社会和情感压力. 和你的十大赌博平台排行榜或你的健康护理团队的其他成员谈谈减轻压力和疲劳的方法.
加州大学旧金山分校健康医学专家已经审查了这些信息. 它仅用于教育目的，并不打算取代您的十大赌博平台排行榜或其他医疗保健提供者的建议. 我们鼓励您与您的供应商讨论您可能遇到的任何问题或疑虑.
